Dreaming of Sleep

Social networking support group for those effected by Narcolepsy.

Birthdays

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Members

  • Kat
  • Hattie Williams
  • Deborah Vandam
  • ky
  • Alan Weldon
  • susan
  • Hedy Mancini
  • Leslie Behm
  • Carolyn Serauskas
  • Ken McGee
  • Chelsey Carlson
  • Ny
  • Florence Wisniewski
  • Melissa
  • Kinser Brown
  • Jim Chastain
We are now a Group on Facebook! Come join us there too by clicking on the picture below!




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WELCOME TO DREAMING OF SLEEP!

THANK YOU FOR JOINING DREAMING OF SLEEP; A SUPPORT GROUP FOR NARCOLEPTICS. THIS IS A PRIVATE GROUP AND ALL APPLICANTS WILL BE SCREENED PRIOR TO APPROVAL OF MEMBERSHIP.

Click on the 'My Stuff' Tab above to customize your profile page. You can send invitations to others that you know have Narcolepsy or to friends and family that would like to learn more about this disorder. Post blogs, upload music and receive comments from other members on your profile page.

PLEASE VISIT THE HELP TAB UNDER 'MY STUFF' FOR RULES, REGULATIONS AND HELPFUL TUTORIALS. Enjoy!


Forum

Kat

Find a Sleep Specialist in your area

I found a site to find an accredited sleep specialist in any particular area. This is great for people who move and need to find a new sleep doctor or for people who want to check out their options i…

Started by Kat in GENERAL DISCUSSION Jan 30.

ky

LA here we come? 1 Reply

Dr pea brain was suppose to send son to see a nose specialist-- messed up and sent him back to the lung Dr --Lung Dr not to happy with  Dr pea brains treatment plan which amounts to nothing---DR pea…

Started by ky in NEW MEMBERS. Last reply by Kat Jan 25.

Leslie Behm

Dealing with being identified as a person with a disability 2 Replies

Any one have any tips or ideas on this especially when it is invisible? Leslie

Started by Leslie Behm in NEW MEMBERS. Last reply by Leslie Behm Jan 4.

Julie

Narcoleptic and Overweight 7 Replies

OK so I feel strange this year. I was always skinny. BMI was healthy. All of a sudden as my N symptoms got worse this year, I have gained about 25 lbs. I was about 15-20 lbs heavier in general after…

Tagged: lbs, pounds, weight, fat

Started by Julie in NEW MEMBERS. Last reply by Hattie Williams Dec. 25, 2009.

Catherine Patin

NIGHT is to DAY as SLEEP is to _____? 5 Replies

A portion of this was posted on another site and I found it hilarious! So, I thought I'd share it with you also. Hope you enjoy): ** Suggested disclaimer, if you have cataplexy, you might want to si…

Tagged: day, sleep, night, cataplexy, narcolepsy

Started by Catherine Patin in NEW MEMBERS. Last reply by Melissa Nov. 29, 2009.

Kat

Do you ever get used to cataplexy attacks? 8 Replies

For the past couple days, my cataplexy attacks have been very frequent and a bit longer than normal. I thankfully have recognized the pre warning signs/feelings and thankfully it hits my face first a…

Started by Kat in GENERAL DISCUSSION. Last reply by Kat Nov. 1, 2009.

Kat

REM Behavior Disorder 1 Reply

In a person with REM sleep behavior disorder (RBD), the paralysis that normally occurs during REM sleep is incomplete or absent, allowing the person to "act out" his or her dreams. RBD is characteriz…

Started by Kat in FORUM GUIDELINES. Last reply by Kat Oct. 28, 2009.

ky

Our Son 2 Replies

Son has been Dx by his shrink having cataplexy. His M-Dr playing games. We are checking on the nau part pretty sure he has nar also. The more I read I see myself and my daughter.The up close and pers…

Started by ky in NEW MEMBERS. Last reply by ky Sep. 26, 2009.

ky

wondering 1 Reply

wondering whats happening--- whats everyone doing-- how are all you doing

Started by ky in GENERAL DISCUSSION. Last reply by Kat Aug. 30, 2009.

ky

other web sights 1 Reply

I'm khorsley from talk about sleep and daily strenght

Started by ky in NEW MEMBERS. Last reply by Kat Jun. 21, 2009.

Groups

Blog Posts

Hattie Williams

More Whining...

Posted by Hattie Williams on February 1, 2010 at 11:03pm

Hattie Williams

just some whining

Posted by Hattie Williams on January 22, 2010 at 9:06pm

Marcianna

Narcolepsy/ ADHD drug recall

Posted by Marcianna on August 18, 2009 at 4:50pm

Aaron Gerschler

Kinda Sad

Posted by Aaron Gerschler on March 9, 2009 at 2:08pm — 2 Comments

 
 

Latest Activity

An event by Hattie Williams was featured
Narcolepsy Network 25th Annual Patient Conference at Hyatt Regency Crystal City Hotel
October 8, 2010 to October 10, 2010
Arlington, Virginia Friday, October 8 – Sunday, October 10, 2010 Hyatt Regency Crystal City Hotel 2799 Jefferson Davis Hwy. Arlington, VA 22202 General Info: (703) 418-1234 Welcome reception: Friday evening, Oct. 8 Full Day Conference Sessions: Sa…
on Saturday
Kat might attend Hattie Williams's event
Narcolepsy Network 25th Annual Patient Conference at Hyatt Regency Crystal City Hotel
October 8, 2010 to October 10, 2010
Arlington, Virginia Friday, October 8 – Sunday, October 10, 2010 Hyatt Regency Crystal City Hotel 2799 Jefferson Davis Hwy. Arlington, VA 22202 General Info: (703) 418-1234 Welcome reception: Friday evening, Oct. 8 Full Day Conference Sessions: Sa…
on Saturday
This is really great Hattie! Thanks for sharing the info. Much appreciated.
on Saturday
Hattie Williams added an event
Narcolepsy Network 25th Annual Patient Conference at Hyatt Regency Crystal City Hotel
October 8, 2010 to October 10, 2010
Arlington, Virginia Friday, October 8 – Sunday, October 10, 2010 Hyatt Regency Crystal City Hotel 2799 Jefferson Davis Hwy. Arlington, VA 22202 General Info: (703) 418-1234 Welcome reception: Friday evening, Oct. 8 Full Day Conference Sessions: Sa…
February 1
Hattie Williams added a blog post
Choosing between eating or sleeping isn't just about eating... Eating is when all the REAL talking gets done. It's when networking and social time happens... and where am I? Zzzzzzz....
February 1
January 30
January 30
Kat added a discussion
I found a site to find an accredited sleep specialist in any particular area. This is great for people who move and need to find a new sleep doctor or for people who want to check out their options if they are not satisfied with their current doctor…
January 30
January 28
January 28
January 25
January 25
Deborah Vandam is now a member of Dreaming of Sleep
January 25
Don't you just love how doctors play ping pong with our lives???? Makes me so frustrated. Wishing you the best of luck with the lung doctor or nose doctor and omg please please please hoping for the sleep specialist to be approved. I really think y…
January 25
ky added a discussion
Dr pea brain was suppose to send son to see a nose specialist-- messed up and sent him back to the lung Dr --Lung Dr not to happy with  Dr pea brains treatment plan which amounts to nothing--- he decided he needs to see a shrink and needs physical t…
January 25
Hattie Williams added a blog post
Sometimes I wonder if I deserve this. Was I particularly cruel to some disabled creature or human in a previous life? I do this to myself. Enrolled in a doctoral program, trying to keep up with “normal” people… struggling through a sun up to sun dow…
January 22

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