Dreaming of Sleep

Social networking support group for those effected by Narcolepsy.

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Members

  • Chris
  • Catherine Patin
  • Kat
  • susan
  • Chuck Z.
  • Karen Detter
  • Aimee
  • ky
  • Kelly.
  • Kathie Mutchler
  • Sandyol Bean
  • Melissa Pinto-Ogando
  • Amanda Fullmer
  • Tech E. Girl
  • megan peters
  • Kelly Ann Raver



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Notes

EPWORTH SLEEPINESS SCALE TEST

Click the picture below to take the Epworth Sleepiness Scale Test used by Doctors as a beginning diagnostic tool for sleep disorders.

Created by Kat Apr 14, 2010 at 4:05am. Last updated by Kat Apr 14, 2010.

 

WELCOME TO DREAMING OF SLEEP!

Click to join narcolepsy-support



THANK YOU FOR JOINING DREAMING OF SLEEP; A SUPPORT GROUP FOR NARCOLEPTICS. THIS IS A PRIVATE GROUP AND ALL APPLICANTS WILL BE SCREENED PRIOR TO APPROVAL OF MEMBERSHIP.

Click on the 'My Stuff' Tab above to customize your profile page. You can send invitations to others that you know have Narcolepsy or to friends and family that would like to learn more about this disorder. Post blogs, upload music and receive comments from other members on your profile page.

PLEASE VISIT THE HELP TAB UNDER 'MY STUFF' FOR RULES, REGULATIONS AND HELPFUL TUTORIALS. Enjoy!


Videos

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Forum

ky

Cataplexy...V...Conversion disorder 5 Replies

Dr was talking about conversion disorders again.The Dr needs a disorder.The DAD looked up conversion disorder. We laughed Sooo hard our sides hurt. Ok just a little.Next Apt with his is going to be…Continue

Started by ky in MISDIAGNOSED. Last reply by ky May 14, 2010.

ky

looking still looking for anyone in bakersfield- kern country

anyone living in bakerfields or kern- central valley--stop hiding-- wanting to be unknown--share what happening in your world and lets get something started hereContinue

Started by ky in GENERAL DISCUSSION May 14, 2010.

ky

LA here we come? 2 Replies

Dr pea brain was suppose to send son to see a nose specialist-- messed up and sent him back to the lung Dr --Lung Dr not to happy with  Dr pea brains treatment plan which amounts to nothing---DR pea…Continue

Started by ky in NEW MEMBERS. Last reply by ky May 14, 2010.

Tech E. Girl

Non-24-hour sleep/wake syndrome

I found this information and can relate to this disorder just as much as I can narcolepsy. Just wanted to share. I copied and pasted the characteristics of this disorder below and also included the…Continue

Started by Tech E. Girl in GENERAL DISCUSSION Apr 13, 2010.

Kat

New Findings for triggers of Narcolepsy

I wanted to share some info that I have come across from the Yahoo Narcolepsy Support Group (which is a very wonderful and informative group to be a part of). Researchers find trigger for narcolepsy:…Continue

Started by Kat in GENERAL DISCUSSION Feb 25, 2010.

Kat

Find a Sleep Specialist in your area

I found a site to find an accredited sleep specialist in any particular area. This is great for people who move and need to find a new sleep doctor or for people who want to check out their options…Continue

Started by Kat in GENERAL DISCUSSION Jan 30, 2010.

Leslie Behm

Dealing with being identified as a person with a disability 2 Replies

Any one have any tips or ideas on this especially when it is invisible?LeslieContinue

Started by Leslie Behm in NEW MEMBERS. Last reply by Leslie Behm Jan 4, 2010.

Julie

Narcoleptic and Overweight 7 Replies

OK so I feel strange this year. I was always skinny. BMI was healthy. All of a sudden as my N symptoms got worse this year, I have gained about 25 lbs. I was about 15-20 lbs heavier in general after…Continue

Tags: lbs, pounds, weight, fat

Started by Julie in NEW MEMBERS. Last reply by Hattie Williams Dec 25, 2009.

Catherine Patin

NIGHT is to DAY as SLEEP is to _____? 5 Replies

A portion of this was posted on another site and I found it hilarious! So, I thought I'd share it with you also. Hope you enjoy):** Suggested disclaimer, if you have cataplexy, you might want to sit…Continue

Tags: day, sleep, night, cataplexy, narcolepsy

Started by Catherine Patin in NEW MEMBERS. Last reply by Melissa Nov 29, 2009.

Kat

Do you ever get used to cataplexy attacks? 8 Replies

For the past couple days, my cataplexy attacks have been very frequent and a bit longer than normal. I thankfully have recognized the pre warning signs/feelings and thankfully it hits my face first…Continue

Started by Kat in GENERAL DISCUSSION. Last reply by Kat Nov 1, 2009.

Groups

Blog Posts

Hattie Williams

More Whining...

Posted by Hattie Williams on February 1, 2010 at 11:03pm

Hattie Williams

just some whining

Posted by Hattie Williams on January 22, 2010 at 9:06pm

Marcianna

Narcolepsy/ ADHD drug recall

Posted by Marcianna on August 18, 2009 at 4:50pm

Aaron Gerschler

Kinda Sad

Posted by Aaron Gerschler on March 9, 2009 at 2:08pm — 2 Comments

Kat

Another Seizure

Posted by Kat on January 22, 2009 at 10:12pm

Kat

Scared and Frustrated

Posted by Kat on September 16, 2008 at 12:30pm — 2 Comments

Michelle

Sorry its been awhile

Posted by Michelle on August 4, 2008 at 4:48am — 1 Comment

sleepfoundation

My Baby Loves Sleep

Posted by sleepfoundation on July 23, 2008 at 2:49pm — 1 Comment

Heather

Angry & how to bounce back?

Posted by Heather on July 7, 2008 at 11:27pm — 5 Comments

Heather

New Narcolepsy Diagnosis

Posted by Heather on June 9, 2008 at 2:32am — 2 Comments

Kat

Took me long enough!

Posted by Kat on June 5, 2008 at 9:41pm

Kat

APPROVED!

Posted by Kat on May 21, 2008 at 4:50pm — 4 Comments

Kat

SLEEP STUDY RESULTS

Posted by Kat on May 16, 2008 at 6:30pm — 1 Comment

 
 
 

Latest Activity

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ky commented on Julie's group 'Narcoleptic with Children'
sons been Dx with cats with out nar for now--b giving the Dr pea brain and Shrink the boot pretty soon--
May 20, 2010
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ky replied to ky's discussion 'Cataplexy...V...Conversion disorder'
hes 24 now its been going on for over 10 years - he was hooked up with wires for the sleep test when we induced an attack it showed up on the brain scans for a moment-- it was the trigger from being awake startled to going into rem or sleep…
May 14, 2010
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Kat replied to ky's discussion 'Cataplexy...V...Conversion disorder'
Does he have lesions on his brain (or spots or foci) found in an MRI? This is demyelination and often is associated with MS, but for me I don't have MS but do have many lesions. Mine has been 'generally' associated with…
May 14, 2010
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looking still looking for anyone in bakersfield- kern country

anyone living in bakerfields or kern- central valley--stop hiding-- wanting to be unknown--share what happening in your world and lets get something started hereSee More
Discussion posted by ky May 14, 2010
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ky replied to ky's discussion 'LA here we come?'
ok it been decided by a specialist in LA after a nigh/day sleep test--that he has cataplexy even before the DR saw him in all his glory--had to trigger 2 attacks for the Dr- one to video and to show another inturn ---while still hooked up to the…
May 14, 2010
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ky replied to ky's discussion 'Cataplexy...V...Conversion disorder'
the shrink also says conversion disorder like a copy cat he is---he has it listed on son student services for school- when he go out he can hear converaions--too lazy to look it up what it realy means
May 14, 2010
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Tech E. Girl left a comment for Kathie Mutchler
Thanks for joining Dreaming of Sleep Kathie. Please click on the icon picture next to this comment to visit the help page for site guidelines and useful tutorials. Join some groups, watch some videos, participate in the forum and most importantly,…
Apr 30, 2010
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Kat left a comment for Kathie Mutchler
Welcome, Kathie! Sounds like you've got quite a few wild stories to share and to overcome. Not many here are active but there is a lot of information and I'm sure if you reach out with questions or stories that people will respond or show…
Apr 30, 2010
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Kathie Mutchler is now a member of Dreaming of Sleep Apr 30, 2010
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EPWORTH SLEEPINESS SCALE TEST

Follow the link below to take the Epworth Sleepiness Scale Test used by Doctors as a beginning diagnostic tool for sleep disorders. Epworth Sleepiness Scale
A note by Kat was featured Apr 14, 2010
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Non-24-hour sleep/wake syndrome

I found this information and can relate to this disorder just as much as I can narcolepsy. Just wanted to share. I copied and pasted the characteristics of this disorder below and also included the link so anyone can read alot more about it.In people with this disorder, the body essentially insists that the day is longer than 24 hours and refuses to adjust to the external light/dark cycle. This makes it impossible to sleep at normal times andalso causes daily shifts in other aspects of the…See More
Discussion posted by Tech E. Girl Apr 13, 2010
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megan peters is now a member of Dreaming of Sleep Apr 13, 2010
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Kelly Ann Raver left a comment for Tech E. Girl
Thank you.
Apr 10, 2010
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Kelly Ann Raver is now a member of Dreaming of Sleep Apr 10, 2010
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Amanda Fullmer and Korry Jane joined Dreaming of Sleep Mar 21, 2010
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New Findings for triggers of Narcolepsy

I wanted to share some info that I have come across from the Yahoo Narcolepsy Support Group (which is a very wonderful and informative group to be a part of). Researchers find trigger for narcolepsy: study(AFP) – Feb 17, 2010GENEVA — Swiss scientists say they have found a trigger for narcolepsy, the health disorder that sparks sudden daytime bouts of tiredness or sleep, in a move that could open up new avenues for treatment.The protein, called Trib2, is produced by neurones that also secrete…See More
Discussion posted by Kat Feb 25, 2010

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